Dear Readers:
I was going to put this up in comments in response to a comment this morning, but I decided to post it here instead, to clarify my stance on warnings on food labels.
Dear Anonymous:
Thank you for your comments. First of all, I want to stress that I think these warnings SHOULD be there. And I realize that in listing these statements, it is actually hurting sales for these manufacturers. This is why some of them are choosing to REMOVE the warning. However, all food manufacturers are businesses, and though the health of their consumers may be very important to them, one can not deny that they also employ lawyers who put policy into place to protect them from lawsuits. This does not take away from the fact that these labels help consumers. But in researching this subject, it has become clear to me that there is absolutely no regulation in place, and there needs to be. Every product should list a detailed, regulated disclosure, explaining exactly what type of manufacturing practices are used... Dedicated Plant, Dedicated Line, GMP, HACCP? And I believe we need to educate people in the food allergy community on what these terms mean so they can make informed decisions about what they feel is safe for them, or their children. I think the Perky's label is the best I've seen so far. But as I said, there is no regulation, no common language in place, like we have for the FALCPA. I'M ON YOUR SIDE. Like you, I think it's a great service to people with life-threatening allergies, or parents of those with life-threatening allergies, and would never suggest removing the warning. The health of the people in the food allergy community is extremely important to me, and my book sales mean nothing (and fyi, if you knew how little money I've made off of 4 years of continuous work on this book, you might think I'm insane to keep devoting so much of my time to it!). I keep up this blog because helping people is important to me, and I am saddened to hear you think I am so selfish as to want people's health endangered for the furtherment of my cookbook.
Have you read the new labeling information on the Allergygrocer.com? It's quite fascinating. I highly recommend it.
all the best,
Cybele
I was going to put this up in comments in response to a comment this morning, but I decided to post it here instead, to clarify my stance on warnings on food labels.
Dear Anonymous:
Thank you for your comments. First of all, I want to stress that I think these warnings SHOULD be there. And I realize that in listing these statements, it is actually hurting sales for these manufacturers. This is why some of them are choosing to REMOVE the warning. However, all food manufacturers are businesses, and though the health of their consumers may be very important to them, one can not deny that they also employ lawyers who put policy into place to protect them from lawsuits. This does not take away from the fact that these labels help consumers. But in researching this subject, it has become clear to me that there is absolutely no regulation in place, and there needs to be. Every product should list a detailed, regulated disclosure, explaining exactly what type of manufacturing practices are used... Dedicated Plant, Dedicated Line, GMP, HACCP? And I believe we need to educate people in the food allergy community on what these terms mean so they can make informed decisions about what they feel is safe for them, or their children. I think the Perky's label is the best I've seen so far. But as I said, there is no regulation, no common language in place, like we have for the FALCPA. I'M ON YOUR SIDE. Like you, I think it's a great service to people with life-threatening allergies, or parents of those with life-threatening allergies, and would never suggest removing the warning. The health of the people in the food allergy community is extremely important to me, and my book sales mean nothing (and fyi, if you knew how little money I've made off of 4 years of continuous work on this book, you might think I'm insane to keep devoting so much of my time to it!). I keep up this blog because helping people is important to me, and I am saddened to hear you think I am so selfish as to want people's health endangered for the furtherment of my cookbook.
Have you read the new labeling information on the Allergygrocer.com? It's quite fascinating. I highly recommend it.
all the best,
Cybele
20 Comments:
At 3:35 PM, Nancy said…
When I was a child, I lived on lamburgers (allergy to beef?), plain baked chicken, vegetables, rice, and water because my Mom was terrified to try anything else. There were no allergy cookbooks or special food labels but there were lots of trips to the ER for "accidents". Even an oxygen tent!
Eleven years ago, when my daughter
came down with food allergies, I had access to one cookbook. I had to try to find "unbuffered Vitamin C crystals". The food outcomes were edible... and I was thankful...
She still made several trips to the ER for accidents (usually I'd missed casein or dry milk powder or she'd smuggled a goldfish cracker at school). I took a picture of her the time she smuggled home a goldfish cracker to remind her what happens when you eat something you're allergic to. You can see it if you like- my blog is
NSQC. Look for the posting "I found a picture of Chels when she was five..." Don't read the other stuff- it's boring...
Cybele, I hate to sound nutty but I'm so tremendously grateful that you created a cookbook with real recipes in it. I'm grateful that you answer questions and I hope you don't stop. I've learned a lot. In my experience, few people have been sensitive to food allergies or tried to change anything. I had a question but my comment is already a novel. Another time...
At 7:12 AM, Anonymous said…
Yes i agree with Nancy i think you are a true blessing to people who need help and i hate that people take that for granted. While i have no major food alergies other then the fact that high citric acid makes me break out in hives, i think its great that your helping families have tastie food ideas and there wonderful in my opinion. So i wish you and your family nothing but the best in life.
Amy
At 7:51 AM, Nancy said…
Dear Cybele,
I read in your book that your son is suspected of having ADHD and that avoiding refined sugar has helped. My child also is suspected of having ADHD. I read that flax seed products help and that there are other natural remedies. Have you heard of anything else because I definitely don't want to go the medication route. I bought Perky's Nutty Flax.
At 10:01 AM, Cybele Pascal said…
Dear Nancy:
My son Lennon was first diagnosed with ADHD at 3. However, he was rediagnosed with SID at 4. This is Sensory Integration Dysfunction. It is a sensory problem, that can often look like ADHD, because sensory distractions cause inattention. So many terms, eh? I find that keeping him off sugar and artificial colors helps his whole system stay calmer, as does a low-allergen diet. Kids with SID very often also have food allergies. There seems to be a relationship. I'm not sure if the food allergies cause the SID, or if they just happen together because there's something going on with the whole neurological system and immune systems. Lennon is doing much better with his SID, and in fact is seeming to outgrow it, but again, this may be a neurological manifestation of a food allergy, so maybe he's just off the offending foods. I'm being very unscientific right now, this is all purely my own speculations. But back to your question. Flax seed oil is said to help with focus/brain function. I had an email from a woman who seemed very knowledgeable who said that apple skins can cause ADHD behaviors, and that taking her son off apples (and this includes organic apples), helped dramatically improve his hyperactivity.
How old is your son?
best,
Cybele
At 9:12 PM, Anonymous said…
Cybele: do you have any special recipes for expectant mother's?
At 10:17 AM, Cybele Pascal said…
All of them, actually. But are you trying to induce labor? I ate spicy foods when I was trying to start my labor.
When I was pregnant with my first son Lennon, I was not on a hypoallergenic diet, because food allergies had not come in to my life yet. But in hindsight, I remember Lennon having hiccups all the time in the womb. I wonder now if he was reacting to the foods I was eating, even back then. I recommend eating a low allergen diet when pregnant to avoid passing allergens on to the fetus. Certainly no peanuts, nuts or shellfish, and then avoiding the other 5 biggies as advised by your physician.
I was a big starch eater when I was pregnant, as I had a lot of morning (all day) sickness. So I would recommend all the baked goods and the hearty side dishes.
At 1:09 PM, Anonymous said…
Hi Cybele --
I am editor of Living Without magazine (a health and lifestyle magazine for folks with alleriges) and I'd like to talk with you about doing an article in our upcoming fall issue. Can you write me back at apitzerwoodward@msn.com and we can discuss this?
Thanks, Alicia Woodward
At 1:30 PM, Nancy said…
Hi,
Cybele and Sara, very interesting comments!
My daughter is 5. She may have SID as my niece was diagnosed with it two years ago and all the cousins seems to function similarly. They're doing sensory integration therapy with my niece and she's doing great. She's even dancing in Irish feis(es) and winning trophies. Her focus (and confidence) is exceptional now. Success breeds success.
There aren't any OT's that specialize in SID in my area so I doubt my daughter will be tested for it. I've been considering going to grad school for OT. Maybe I could be the first specialist in the area.
It wouldn't surprize me if ADHD and SID are related to food allergies. My older daughter has many. I've read about food allergies and asthma being linked to SID, diabetes, PCOS and even depression (which is also a seratonin deficiency disorder). Makes 'ya wonder...
Nancy
At 10:28 AM, Cybele Pascal said…
Thanks for your comments everyone. Serotonin can certainly be effected by diet, so perhaps, by extension food allergies can effect serotonin levels.
Nancy, I'm sorry I assumed your younger child was a boy. Being the mother of two boys, I sometimes think everyone else has boys too! I think 5 is a little young to diagnose ADHD anyway. They say you really can't before 7 years old. And given that there are others in your family with SID, I'd look into it. Lennon responded very favorably to his OT. I'm really against medicating little children if at all possible, and I have come to suspect that many children are misdiagnosed with ADHD and are being medicated for no good reason.
Nancy, you should become a SID specialist if you're interested. So many kids have it. Many many children on the Autistic Spectrum have SID, and could benefit from your help. And then lots of kids who aren't on the Spectrum have it too, but go undiagnosed because teachers and other specialist aren't looking for it -- and are misdiagnosing it as ADHD!!!
All the best,
Cybele
At 4:22 PM, Anonymous said…
Hi Cybele! After looking at this blog for awhile (my school is a nut-free school & I have a bbunch of friends with allergies), I finally got ahold of your book! The recipes sound amazing. I was looking at it with my baby cousin & she was disappointed that there weren't any pictures. =P You can't please everybody, especially 5 year olds. I just wanted to say that I loved it. =] I also liked the little italicized blurbs. Your book is amazing. Thanks for writing it!
At 7:51 PM, Anonymous said…
Hi Cybele, i just wanted to say that tonight for dinner i made home made fried chicken and instead of the regular flour i always used i picked up some organic rice flower and let me say my chicken turned out AMAZING! And i'm picky about my friend chicken sense i come from a family of southern chef's.
Oh and i was reading the comments about kids with ADHD and dye allergies. When my brother who is 6 years younger then I, was younger we thought he had sever ADD/ADHD but my mother didnt want to medicate him considering he was only 4. Well it just turned out that the red die in the fruit juice and snacks he ate daily was the cause of the problem. He's 15 now though and has out grown the allergie but i still keep the red skittles for my self :).
Amy
At 8:08 PM, Nancy said…
Hi Cybele,
Nancy again.
I hope you don't mind if I stray from food allergies for this comment...
I just want to say how impressed I am by the wealth of information about SID on the internet and how willing people are to share! So many of the materials out there to help kids with SID are things that I seemed to gravitate toward buying for my kids anyway. Have you found that too? Koosh balls, squishy stuff, mini-trampoline and sound machines...Our yard is filled with swings. I've been giving my kids massages since they were babies. Our home is all soothing blues and greens. How weird...
Yes, I could really be into this field...
Was Lennon prescribed a "sensory diet" by the OT? Some of the exercises sound a little strange.
Sorry, I get a little over-enthusiastic sometimes.
Thanks!
Nancy
At 12:22 PM, Anonymous said…
Oh my goodness - ADD, ADHD and now SID? It seems as though there are more and more things affecting kids these days. Do you think these are related to Vaccines???
At 9:13 PM, Cybele Pascal said…
Dear Angela:
I love the idea that a five year old was looking at my book. Sorry to dissapoint her, but I'm still pleased to know she looked at it. Do you know the book "Salad People" by Molly Katzen? It's a cookbook for kids your cousins age. Maybe it would be fun for you and she to cook from it together? It doesn't have photographs, but it has really cute colorful drawings.
Dear Amy:
Thanks for the tip on the rice flour! I'm using rice flour more and more these days, as I try out gluten-free alternatives. And that darn red dye... so many people have a bad reaction to it. When I was a kid, they had Red Dye #2, which my mother was always checking labels for. It was like poison, according to her. Bad stuff. But i know those skittles taste yummy!
Dear Nancy:
Check out the catalogue "Abilitations Integrations". It's an awesome product catalogue for kids with learning and sensory differences. Really cool stuff. And Lennon did not have a "Sensory Diet" per se, just exercises to do with him, stuff like rolling him up tightly in a blanket, which he adores, swinging, and having him carry heavy objects, just to name a few.
Dear Anonymous:
I'm not sure about a relationship between ADD, ADHD and vaccines. I do know that many kids who are autistic have SID, so if their autism is related to vaccines/mercury then by extension so would the SID. Again, I believe there is a relationship between my son's SID and his food allergies. I haven't proven this, but I have been encouraged to find Allergists who believe this could indeed be true. There is much research to be done about the relationship between certain foods (casein and gluten) and SID and Autism.
At 3:54 PM, Anonymous said…
Cybele,
Thank you so much for what you are doing. I just found this site. I am a RNBSN. I work in an elementary school in rural Tennessee. Every year I seem to have more students with severe food allergies, autism, SID, and ADHD. I will recommend your book to parents. I think it will be a great help. I am concerned about being able to find all the ingredients in our area. Can you suggest an on-line source?
Cindy
At 5:40 PM, Anonymous said…
I am a mother of 2 boys also. Mine are considerable older, one is a freshman in college and one is a freshman in high school! I feel like a terrible mother sometimes because at this age, I thought I'd have it all figured out!
My older son developed psoriasis at the age of 8. We have regularly seen a dermatologist and at different times it has been under control. Since his teen years began however, it seems we have been fighting an uphill battle. Nothing has given him any relief, and as a consequence, he is quite self conscious about his appearance. I have not had the opportunity to read your book yet, but have you any suggestions as far as foods to avoid and this skin condition?
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